Well, I am on holiday for the summer and it's really nice not to have to get ready very early in the morning to get on my bus! I love going on the school bus, and there are 2 ladies that look after me and about 5 others, Gill and Rene. But I have to be ready for 8 o'clock, and Mummy finds it hard to get me done on time! So I get quite stressed and usually try and kick her (or Daddy) out of the way so they leave me alone! I like taking my time over things and hate being rushed. - So now I can stay in my pyjamas all morning if I want to! And breakfast goes on for about 2 hours, it's great.
So we've been going to the swings a lot, and also playing in the garden on the trampoline and the climbing frame, and pushing toy cars around. I love playing with toy cars and spend hours arranging them into rows or other positions; I make up little stories and they each have their own character. Sometimes they are naughty and I tell them off. Sometimes when I go for a walk, I am pleased to see them when I get back and say " 'eyo carck, back now!" ('hello cars, I'm back now') and give them a kiss.
This week end was really sunny and hot and we got the pool out and got wet! We spend all the time outside. We went to church yesterday and I played with all my friends there. I like it there and I get a lot of attention!
My friend Zephan from my school came with his mummy and his big brother Zach last Friday morning! Mum hadn't met him before, but she thought he was really cute, and very funny! He has Down's Syndrome like me, and he is 3. His Mum and Dad go to church too, and Mummy was really pleased about that :)
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hello i am thomas, i have down's syndrome and this is my blog. i want to tell you about all the good things, and sometimes not so good things, in my life!
The Down Syndrome Creed
My face may be different but my feelings are the same.
I laugh and I cry and take pride in my gains.
I was sent here among you to teach you to love,
as God in the heavens looks down from above.
To Him, I'm no different His love knows no bounds;
It's those here among you in the cities and towns,
that judge me by standards that man has imparted,
but this family I've chosen, will help me get started.
For I'm one of the children so special and few,
that came here to learn the same lessons as you.
That love is acceptance, it must come from the heart;
We all have the same purpose, though not the same start.
The Lord gave me life to live and embrace,
and I'll do it as you do, but at my own pace.
~Author Unknown
I laugh and I cry and take pride in my gains.
I was sent here among you to teach you to love,
as God in the heavens looks down from above.
To Him, I'm no different His love knows no bounds;
It's those here among you in the cities and towns,
that judge me by standards that man has imparted,
but this family I've chosen, will help me get started.
For I'm one of the children so special and few,
that came here to learn the same lessons as you.
That love is acceptance, it must come from the heart;
We all have the same purpose, though not the same start.
The Lord gave me life to live and embrace,
and I'll do it as you do, but at my own pace.
~Author Unknown
Welcome to Holland - Emily Perl Kingsley
I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this...
When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. Michelangelo's David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to
Holland."
"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."
But there's been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around... and you begin to notice that Holland has windmills... and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."
And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very, very significant loss.
But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.
Copyright © 1987 by Emily Perl KingsleyAll Rights Reserved
When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. Michelangelo's David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to
Holland."
"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."
But there's been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around... and you begin to notice that Holland has windmills... and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."
And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very, very significant loss.
But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.
Copyright © 1987 by Emily Perl KingsleyAll Rights Reserved
5 comments:
aww sweet sweet thomas how you must be loving the summer. I no I ahve been around to take ben out lots but I prommis I will take u out one day jus me and u (if mummy alows that)hope u r well!
love clair xxx
yes that would be nice 'cos I love you very much, 'kair'!!
Just keep blogging, blogging, blogging.
Good on yer Mrs Wibbs enjoyed your Blog. May God bless you as you parent.
thank you smootherprince, I have only just checked this blog this side of our holiday and I agree a post from Thomas is long overdue. Look forward to hearing from you again here or on 'Going Deeper'...
are you back at school now?
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